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2 Comments

  1. I believe no woman should have a radical hysterectomy if they do not have proven cancer. If I had had cancer, it would probably be worth it. I did NOT have cancer. The goal was to find out why I was having high testosterone. In June 2026 I had a DNC, endometrial biopsy and polyp removed. I had EIN cells, which are precancerous, and thick uterine lining. The recommendation was to remove ovaries.
    I was sent to a surgeon which immediately wanted to remove everything. I fought to keep lymph nodes but did not realize the consequences of removing my cervix. The cancer society recommends not removing the cervix unless one has first stage cervical cancer. I would not have allowed if I had known the aftermath of removal. I read and read but could not find anything referring to the cuff much. After the surgery I knew what to look for and I found information.
    Why would anyone want to trade the 60% potential of cancer for the aftermath of a radical surgery? It is horrendous. My bowels and bladder problems have been aweful. I believe this is the doctors responsibility to inform what she is trading for. I would NEVER have had the surgery. OMG, if I had let her take lymph nodes it would be even worse.
    I want to add that I am 75, I never had bleeding. My quest was height testosterone. This was way over kill
    She was the second opinion surgeon I went o because of the severity of surgery. I trusted she would advise more conservative. She was just as bad. I have no trust at the present. I was not offered PT before or after. I requested it and have an appointment six months after my surgery. I believe this shouldโ€™ve been arranged at the point of my surgery not me having to ask for it afterwards. I was also not given a belly band right after my surgery. Iโ€™m walking around the house with a pillow, trying to hold my stomach and someone told me about the belly bands. I called the office and of course they gave me one, but why did I have to ask. I am 75. I am not 40 or 50. I walked I watch have an excellent diet. Iโ€™ve always tried to be active and this has been a horrific experience. The worst part of it is, I can do all I want to to heal, but I donโ€™t know that my bladder and bowels will ever operate correctly. I believe a nerve in my leg and right hip were cut or something because thereโ€™s a numbness.
    I am writing this because for all your articles women need to know the truth about this operation. I donโ€™t think they realize the consequences whether youโ€™re young or old. I definitely feel that. The best interest of the patient is not served with the patient. Individual needs in this operation. It has become oh my God youโ€™ve got pre-cancerous sales. Letโ€™s take everything out so you wonโ€™t have cancer. I have news for you you can still get cancer may not be ovarian because you donโ€™t have ovaries, but you can still get cancer. Iโ€™ll stop rambling, but I think this is horrible and I think someone should tell the truth about this Surgery. If I had had cancer it might have been worth it. I did NOT have cancer

    1. I am so sorry you have had to go through such a difficult and distressing experience after your surgery. My heart goes out to you, especially knowing how active and healthy you were before the operation.

      You raise such an important point about informed consent. Unfortunately, many women feel they are not given enough information about the possible long-term side effects and complications of a hysterectomy. I believe every woman deserves to know exactly what the surgery involves, what the potential consequences are, and whether there are alternative treatments available. Only then can she make a truly informed decision.

      Regarding the numbness in your leg and hip, I do want to offer you some reassurance. Nerve irritation or injury can sometimes occur because of the position your body is placed in during surgery, particularly when the legs are elevated in stirrups for an extended period. This can put pressure on or stretch certain nerves. In many cases, the numbness gradually improves over weeks or months, although recovery varies, and some nerve injuries can be more persistent.

      Since you are still experiencing numbness, along with bladder and bowel problems, I would strongly encourage you to have these symptoms properly evaluated rather than simply waiting for them to disappear. I also hope your upcoming pelvic floor physical therapy appointment will give some relief.

      Thank you for sharing your experience so openly. Stories like yours matter because they remind us that a hysterectomy is major surgery, and its effects can be very different from one woman to another. While surgery can be necessary and even lifesaving in certain circumstances, women deserve to understand both the benefits and risks before making such an important decision.

      I sincerely hope you begin to see improvements and find the support and care you deserve. โค๏ธ

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